Our work
Small, practical, and close to the ground.
We are new. We would rather do a few things properly than announce a national programme we cannot deliver.
Peer support
The core of the foundation is people talking to each other. A WhatsApp community where questions get answered by people who have lived the answer, and regular meet-ups. New parents are paired with parents who are further along.
Screening drives
Knowing your status is cheap and changes decisions. We organise testing days with partner clinics and cover the cost for people who cannot pay.
Talking where people already gather
Schools, churches, mosques and community meetings. Most stigma comes from not knowing what sickle cell is, and that is fixable in a forty minute conversation.
Getting people to care
Transport money for families who live far from a clinic, and help covering folic acid and preventive antibiotics for members who cannot afford them. Unglamorous, and it is the thing members ask for most.
What we do not do
We are not a clinic and we do not give medical advice. We do not diagnose, prescribe or treat. When something needs a clinician, we help you get to one.